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Healthcare stigma in the COVID-19 era

Since the onset of the COVID-19 pandemic, healthcare workers in conflict zones and peaceful countries alike have faced countless challenges, including shortages of protective equipment and insufficient protocol to treat the new virus. Some doctors, nurses, ambulance drivers and other healthcare professionals have experienced stigmatization within their own communities, triggered by an intense anguish and an often-disproportionate fear of infection. As a result, not only are those affected by COVID-19 blamed as ‘plague spreaders’, but the healthcare staff providing for them also face discrimination.

In this post, ICRC Health Care in Danger delegate Paola Forgione reflects on the role that society plays in either supporting or stigmatizing people affected by the virus and healthcare workers, based on her professional research as well as her own personal and recent experience as a COVID-19 patient.

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‘Please, please, don’t tell anyone I have COVID-19!’

This was me, just a few weeks ago, begging my closest friends on the phone after my results came back from the lab. Although acutely aware that 50 million other people in the world had received the same diagnosis, I felt ashamed and even slightly afraid of social rejection.

Thanks to the support of family members, friends and colleagues, I managed to quickly process and overcome those emotions. I have even decided to share my experience publicly because — after months researching the issue of stigmatization against COVID-19 patients and health workers — experiencing the virus first-hand offered me a completely new perspective.

For example, I have wondered what my behavior would have been, had I contracted the virus in an environment hostile towards people affected by COVID-19. Would I have been so diligent in getting tested when the first symptoms appeared? Would I have alerted the people I had been in contact with as soon as possible? Would I have welcomed the doctor’s order to stay in isolation?

In all honesty, if a diagnosis risked relentlessly and disgracefully exposing me and my family to social revulsion and stigma, I would have tried to avoid drawing attention to it by any means. I could have even acted aggressively towards the healthcare staff requiring me to get tested or to quarantine.

My privileged experience with COVID-19 made me realize how vulnerable people affected by the virus in other contexts may be, and how crucial the role played by the social environment in accompanying them during the diagnosis and recovery process. Stigmatizing people who have (or may have) COVID-19 can only have a negative impact, not only on patients, but also on the whole healthcare system and its capacity to respond to the pandemic. Those consequences are even harsher in countries affected by war and other situations of violence, since the healthcare system is already overwhelmed with responding to other emergencies, often in very difficult working conditions.

A hidden and dangerous threat

One of the most immediate and far-reaching consequences of stigmatization is that it may prevent people from seeking medical help even if they have COVID-19 symptoms, out of fear to be labelled as a ‘plague spreader’ and rejected by their own communities. In a social environment where COVID-19 patients and their families are regularly bullied, threatened or even physically assaulted, people will think twice before exposing themselves and their own family to ignominy and violence.

Often, COVID-19 is yet another pretext to marginalize groups that are already vulnerable, such as migrants or ethnic minorities, especially — but not only — in societies divided by conflict and violence. Individuals may try to avoid screening, as the certain disastrous social consequences of a COVID-19 diagnosis — which often exacerbates economic ones — are sometimes feared more than the potential health risk of the virus itself. Avoiding screening increases the number of undetected infections, which further spread the pandemic, and may even result in violence against the healthcare staff.

The consequences of stigmatization on the healthcare system not only impact COVID-19 patients and their families, but also the healthcare workers due to their close contact with people affected by the virus. Since the pandemic outbreak, healthcare workers have been physically or verbally abused, evicted from their homes, ostracized from their communities, had bleach or acid thrown at them in the public transport, and even shot at. This aggression, generally perpetrated by common citizens afraid of the virus, clearly undermines the system capacity, already stretched by the challenges of the pandemic and, in countries affected by war and violence, by the usual rates of people wounded by fighting, which have not decreased during the last months.

Stigmatization against health workers add to their stress and fatigue, which is already high during outbreaks of infectious disease, as they deal with the fear of infecting themselves or their own families. Stigmatization contributes to professional burnout, missed shifts, mass resignation of qualified personnel, and an overall decreasing quality of the healthcare system’s performance. During the current crisis — marked in most countries by a shortage of medical staff against a rising number of infections — many health workers have decided to quit due to the pressure and poor working conditions. Understaffing, which is already an endemic problem in countries affected by war and violence, contributes to a reduced healthcare system capacity to deal not only with the pandemic, but also with the other concurring health emergencies.

Despite the negative outcome, blaming people for ‘spreading the virus’ seems to be — from the point of view of those who embrace the stigmatizing behaviour — a defense mechanism vis-à-vis the threat of infection. Identifying ‘the spreaders’ and shielding ourselves from them may give us an apparent sense of control, and thus comfort, helping turn a mysterious, invisible and frightening entity like the virus into something familiar, concrete and manageable.

This phenomenon is not new: historians recall that the hunt for an enemy has always followed closely on the heels of a pathogen, as the expression of a collective desire to assign responsibility. While this process relates to some extent to collective psychology and human nature, political leaders and media also play a key role in it, as people look to them desperately in search of answers and guidance during confusing and uncertain times, such as we are experiencing today. Their messages may further foment agitation within the society, which leads to a vicious circle of stigmatization and division. However, political leaders and media are also in the position to de-escalate tensions and convey a message of solidarity and togetherness.

Sandesh Ilhe
Sandesh Ilhe
With an Engineers degree in Advanced Database Management and Information Security, Sandesh brings the deep understanding of the digital world to the table. His articles reflect the challenges and the complexities that come along with every disruption in the industry. He carries over six years of experience on working with websites and ensuring that the right article reaches the right reader.